Why celiacs are slowly dying

The study doesn't tell us anything about the effects of a gluten-free diet on overall mortality rates for celiacs, which is among the first questions celiacs might have. Was the increase due to celiacs who didn't follow a strict gluten-free diet? Certainly, a statistically significant increased mortality risk warrants further study. For people with celiac disease who maintain good gut health with a gluten-free diet, the most relevant question will be whether a gluten-free diet and gut healing mitigate this higher risk in any appreciable way.

This study lays the groundwork for further studies on the effects of gut healing and a gluten-free diet based on the slightly higher mortality risk for celiacs. Read more at Jamanetwork. Edited April 22, by Scott Adams. Posted April 15, Here is a good link to additional resources for mortality in those Refractory Celiac's who do not improve on a gluten free diet I didn't see it linked.. When this happens a Celiac is said to be in "Crisis" You will probably have low albumin levels and electrolyte abnormalities Posted April 21, Many people eat an unhealthy gluten free diet.

The food in magazines, websites, etc are often full of junk. This may explain these statistics. If you eat a healthy gluten free diet I think the results could be very different. This aspect is not mentioned in the article. Posted April 22, My family are coeliaques - my uncle died aged 93, my father 78 from cancer of the larynx he'd been a heavy smoker and their cousin died last year aged 98!

She was very strict about eating well and organic! Hopefully they will do more research comparing different groups who are gluten-free. Posted April 23, Hi, in the above paragraph someone posted about refractory celiac disease link. Would the poster post the link again. As someone else commented. Diet , adherence and quality of food is huge. I could go and on but posting a study like that is alarming. If I was newly diagnosed with celiac disease I would be freaking out. Just my opinion.

We just report the latest research, whether the findings are positive or negative. Unfortunately it would not be ethical for us to candy coat the results of this study, which indicates that CD is a serious disease, and it should be taken very seriously.

Posted May 5, I have Celiac Disease, I was very sick almost died before I was diagnosed 4 years ago. I am near 92 years old. I have a celiac doctor that keeps my checked.

I was having blood test every 6 months, following strick Gluten Free diet. Diet is very important and I have only had 1 time I messed up. So its really up to the person to follow the diet. You are posting as a guest.

If you have an account, sign in now to post with your account. Note: Your post will require moderator approval before it will be visible. Restore formatting. Only 75 emoji are allowed. Display as a link instead. It's not that I'm so smart, it's just that I stay with problems longer.

I would question where they are getting these healing " statistics"? Many Celiacs have had repeat biopsies after 2 years and been found to be healed. Some don't bother to do that because they feel good and their blood work is good. This link is to a site that wants to sell things, not a medical research site, so I take that into account. Not sure of the credentials of those two guys pictured, either. Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late s.

Fighting the battle of the battle within myself, and I'm going to win! Won't ever try quinoa again! Besides, we all start slowly dying from the day we are born. This blog talks about a study of people who experience symptoms while on a gluten free diet. You aren't alone there. I put myself in the super sensitive celiac category. This site complies with the HONcode standard for trustworthy health information: verify here.

View HONcode Certificate. This site places cookies on your device Cookie Settings. Continued use is acceptance of our Terms of Use , and Privacy Policy. This site places cookies on your device Cookie settings. Continued use is acceptance of our Terms of Use and Privacy Policy. Sign in with Facebook. Are Celiacs Really Slowly Dying? Recommended Posts. Scouts Posted December 28, Posted December 28, Celiac disease is a systemic autoimmune disease with gastrointestinal symptoms as well as multiple, but variable, non-gastrointestinal symptoms.

Signs and symptoms may begin from early childhood to adulthood. In adults, the age at diagnosis is usually between 30 and On average, the time between the first symptoms and diagnosis is about 11 years due to the wide range of non-specific symptoms and lack of symptoms in some people. Gastrointestinal symptoms of celiac disease may include chronic or recurrent diarrhea; malabsorption ; abdominal pain and distention; bloating; vomiting; and weight loss. People with mild to severe gastrointestinal symptoms are usually said to have 'classic celiac disease.

People without prominent gastrointestinal symptoms are often said to have 'nonclassic celiac disease,' which is more common than classic celiac disease. Iron-deficiency anemia is the most common finding of nonclassic celiac disease, and may be the only finding. Some affected people have no symptoms often identified because of an affected family member or screening and are said to have 'silent celiac disease.

Celiac disease causes inflammation of the small bowel, damage to the villi small, finger-like projections that protrude from the lining of the intestinal wall , and subsequent malabsorption of nutrients.

This inflammation damages the villi, causing them to become shortened and flattened, thus unable to effectively absorb nutrients. The inflammation as well as poor nutrient absorption may lead to the non-GI signs and symptoms of celiac disease. The long-term outlook prognosis for people with celiac disease can vary because some people have no symptoms, while others have severe malabsorption features. Overall, people with untreated or unresponsive celiac disease have increased early mortality compared to the general population.

Currently this outcome is rare, as most people do well if they avoid gluten. This healing most often occurs within months in children and may take years in adults.

In rare cases there can be long-term damage to the lining of the intestines before the diagnosis is made. References References.